n last month’s newsletter I described events leading up to Sam’s hospitalization on May 9th, 2024. He had been home five weeks and five day. We loved having him home, but it was daunting taking care of him as he could not walk without support and there were so many tasks to complete each day—breathing treatments, medications, exercises, bathing, nebulizing, eating. External ventilation at night. But was still Sam in his hospital bed in the living room. Still with us. Alive. Breathing, though with effort.
While he was still in the emergency room, we learned that despite all our efforts, his CO2 levels were higher than measurable. In that moment, we knew what was wrong (at least one thing!) and we believed that with time, he would come home again. We (me and my two youngest children) (my two youngest children and I) were also exhausted. . .
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